Epilepsy is one of the most common neurological conditions, affecting over 40,000 people in Ireland. Established in 1966, Epilepsy Ireland is the national organisation supporting and representing people with epilepsy and their families. Our vision is to achieve a society where no person’s life is limited by epilepsy.
We provide a range of support, training and education services for people with epilepsy, their family members, as well as professionals. We work to raise awareness of the condition and improve public understanding in order to reduce stigma. We advocate on behalf of the epilepsy community, and we invest in high-impact Irish research into the causes, impact, treatment and care of the condition.
Following a recent review of the board’s skills and experience, Epilepsy Ireland is seeking to appoint new voluntary board members with a background or expertise in one or both of the following areas:
If you have experience in either of these areas and would like to find out more about the organisation and the role, we would love to hear from you!
General Duties of Epilepsy Ireland Board Members:
The Board of Directors is responsible for setting the organisation’s strategic direction and monitoring implementation of strategic and operational plans. It ensures that the organisation’s activities support the vision, mission, values and aims of the charity.
The Board also has responsibility for ensuring that the highest standards of governance and quality are implemented, and that all legal and regulatory obligations are adhered to.
The board monitors the organisation’s financial performance and ensures that all resources are properly utilised in furtherance of our mission, vision and aims.
The Board works closely with and supports the CEO, who has responsibility for the day-to-day management of the organisation and for executing agreed strategies and plans. Board members are also encouraged to participate on one (or more) sub-committees, and act as ambassadors for the organisation and for the condition of epilepsy.
A detailed role specification is available on request.
In addition to the above, board members provide their individual expertise and experience in contributing to the Board’s decision making. In relation to the role(s) we now seek to fill, this may include:
- Advising the Board on the organisation’s compliance with its legal obligations e.g., employment, health & safety, data protection, company & charity law.
- Monitoring the organisation’s compliance with its Constitution and with the Charities Regulator Governance Code.
- Advising the Board on any legal aspects or risks associated with the organisation’s services, advocacy or other activities.
- Ensuring that the organisation is a responsible employer and adheres to employment legislation and good practice
- Inputting into the organisation’s recruitment and people management policies and procedures
- Advising the board and CEO on relevant risks and HR issues that may arise from time to time.
- A commitment to the vision, mission and values of Epilepsy Ireland.
- Sound judgement, impartiality and independence.
- A willingness to fulfil the duties and standards of conduct required of a board member of a national organisation and to invest the time/ personal commitment required of the role.
- Strong leadership, communication and decision-making skills and and ability to work effectively as part of a diverse team
- A commitment to good governance, accountability and quality
- Relevant legal or HR qualifications and experience.
- Previous experience or knowledge of the charity sector desirable e.g., previous board or sub-committee roles or volunteering experience.
The Board meets 7 times per annum and meetings take 2 – 2.5 hours on average. Meetings continue to be held remotely at the present time. Materials needed for the meetings are circulated one week in advance.
Sub-committees meet approx. 2-4 times per annum and board members typically attend a number of the organisation’s events during the year, including the AGM.
Board members are nominated, appointed and serve in accordance with the provisions of Epilepsy Ireland’s Constitution. Terms are four years in duration and a maximum of two terms may be served.
Full induction is provided to all new board members.
To find out more about epilepsy and Epilepsy Ireland, see www.epilepsy.ie.
For information on our board and our governance, visit the Governance section at www.epilepsy.ie/content/governance.
Get in touch:
We hope that you agree that this is an exciting opportunity to lead in the future development and growth of an established national organisation with a proven track record in supporting and representing people with epilepsy and their families.
To find out more about how you can make a difference, click APPLY or get in touch with Peter Murphy, CEO at firstname.lastname@example.org.
We look forward to hearing from you!